Your PKU journey,
managed with confidence
MyPKU helps people living with Phenylketonuria track blood phenylalanine levels, connect with others who understand, and access tools built specifically for the PKU lifestyle.
What is PKU?
Phenylketonuria (PKU) is an inherited metabolic disorder that prevents the body from breaking down phenylalanine which is an amino acid found in most protein-containing foods. Without careful management, high phenylalanine levels can cause serious neurological harm.
People with PKU need to monitor their blood phenylalanine levels regularly through home blood spot testing, maintain a strict low-protein diet, and stay in close contact with their metabolic team. MyPKU is built to make that process simpler.
Everything you need to manage PKU
Designed by someone who lives with PKU. Every feature exists because someone needed it.
Blood Level Tracking
Log every blood test result in seconds. Visualise trends on a chart with your target range clearly marked to spot patterns and stay ahead.
- Multiple units (µmol/dL, mg/dL, mg/L)
- Export data as CSV
- Filter and search results
AI Diary Summaries Coming soon
Plain-English summaries of your blood phenylalanine trends, generated from your diary history. Not yet available; we will let users know when this feature launches.
- Trend summaries in plain English
- Designed for non-clinical guidance only
- Will be a Premium feature
PKU Community
Share experiences, ask questions, and offer support in a safe, moderated space built exclusively for the PKU community.
- Share posts and join the conversation
- Community guidelines enforced
- Premium badges for supporters
Your PKU Profile
Store your diagnosis details, phenylalanine limits, and personal information securely in your GDPR-compliant profile.
- PKU type and Phe limit
- Full data export
- Right to erasure
Food Search & Safety Checker
Scan a barcode or search by name to instantly see phenylalanine and nutritional data. Premium members also get AI-powered ingredient analysis that flags every PKU-incompatible ingredient with severity ratings and plain-English explanations.
- Protein and Phe per 100g
- Name search across millions of foods
- AI ingredient analysis (Premium)
PKU Shop
Browse and purchase PKU-related books, resources, and merchandise including the beloved Rosey Raccoon series.
- PKU children's books
- Secure Stripe checkout
- UK, Ireland & international shipping
See your phenylalanine trend at a glance
Every blood test result is plotted on a live chart, building a complete picture of your levels over time. Add a result in seconds: date, method, value, and notes. Then watch your history build.
Filter by date range or method, download all your data as CSV, and share with your metabolic team at your next clinic appointment.
Start Tracking Today
Your health data, under your control
Store your PKU diagnosis date, type, and daily phenylalanine limit alongside your personal details. Your data is encrypted, never sold, and fully GDPR-compliant.
You can export everything at any time or request full deletion. Your data belongs to you, always.
Create Your ProfileFind Phe and protein for any food
Scan a barcode or search by name across millions of products. Trusted public nutrition databases power the lookup, and MyPKU shows you protein and phenylalanine per 100g in one tap.
Save your most-used items and check labels before you buy. The free plan covers everyday lookups; Premium unlocks unlimited searches.
Try the Food Search
Spot risky ingredients before you buy
Premium members can run any product's ingredients list through our AI safety checker. Every ingredient is flagged with a severity rating and a plain-English explanation of why it matters for someone living with PKU.
It is a second pair of eyes for the label, not a substitute for advice from your metabolic team.
Try PremiumA feed for the PKU community
Share an update, ask a question, or read what others in the community are talking about. Posts and comments are moderated and the space is kept exclusively for people living with PKU and their families.
Premium supporters get a visible badge next to their name as a small thank-you for keeping MyPKU running.
Join the Conversation
“MyPKU was created because managing PKU deserved a better tool... one designed from lived experience, not just clinical assumptions.”
Danielle Freeman
Founder · Author of “Rosey Raccoon Has PKU”